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Another CDG & Allies-PPAIN work done by Professionals and inspired by CDG patients and families needs. This #CDGPublication analyses and describes heart disease in CDG. Cardiac complications are life-threatening, but there are already some successful management and treatment approaches available. Read the abstract HERE. Write to sindromecdg@gmail.com to get a free full copy. 
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June 2018
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Research
- WP1 executive commitee
- WP2 CDG Diagnosis
- WP3 CDG Genetics
- WP4 Biology to guide CDG therapies >
- WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
- WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
- WP7 CDG psychology and educational research >
- WP8 CDG Lobby and Representation >
- WP9 Communication and Dissemination >
- WP10 Donations & Funds
- WP11 Collaborations and Open positions
- WP12 CDG & Allies Community Advisory Committee
- Resources
- Donate
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