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#RareDiseasesNews: How Rare are Rare Diseases? Government health organizations, pharma companies and patient advocates are working to solve the frequency-bias #OrphanDrugs Read more HERE 
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May 2018
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- About
-
Research
- WP1 executive commitee
- WP2 CDG Diagnosis
- WP3 CDG Genetics
- WP4 Biology to guide CDG therapies >
- WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
- WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
- WP7 CDG psychology and educational research >
- WP8 CDG Lobby and Representation >
- WP9 Communication and Dissemination >
- WP10 Donations & Funds
- WP11 Collaborations and Open positions
- WP12 CDG & Allies Community Advisory Committee
- Resources
- Donate
- Blog
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