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#CDGNews We are just so thrilled to announce that Eleonora Passeri has joined our international #CDGResearch network!! Eleonora is both a science and social media consultant and we are very lucky to count with her expertise and motivation. To know more about Eleonora, read her biography HERE Also, you can't miss her #RareTalk interview HERE. Welcome Eleonora! The CDG Community is very glad to have you join us - We know that Together we'll do great things! 
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#RareDiseasesNews: EURORDIS - European Rare Diseases Organisation has launched a new 5min-long survey for patients and families around the world to share their views on RESEARCH. You can contribute until October 26. Let's make the CDG Voice Heard, Let's identify our priorities as a Community! The survey is available in 23 languages! Find it HERE  #RareDiseasesNews:What is #CDG? It stands for Congenital Disorders of Glycosylation and these are a group of metabolic disorders with over 100 different types. The most common form is called PMM2-CDG. Watch this video to know more, share and like it to raise #Awareness! Thank you💚 |
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June 2018
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Research
- WP1 executive commitee
- WP2 CDG Diagnosis
- WP3 CDG Genetics
- WP4 Biology to guide CDG therapies >
- WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
- WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
- WP7 CDG psychology and educational research >
- WP8 CDG Lobby and Representation >
- WP9 Communication and Dissemination >
- WP10 Donations & Funds
- WP11 Collaborations and Open positions
- WP12 CDG & Allies Community Advisory Committee
- Resources
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