• About
  • Research
    • WP1 executive commitee
    • WP2 CDG Diagnosis
    • WP3 CDG Genetics
    • WP4 Biology to guide CDG therapies >
      • GlycoImmunology >
        • ImmunoCDGQ
      • Cardioendocrine
      • Liver
      • Neurology
      • Hematology
      • Ophtalmology
      • Skeletal Disease
    • WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
      • Biomedical
      • Computational
      • Metabolomics
      • Systems Biology
    • WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
      • Patients
      • Pharmacological
      • CDG ​Portugal
    • WP7 CDG psychology and educational research >
      • Psychology
      • Educational
      • Language
    • WP8 CDG Lobby and Representation >
      • Patient-Centered Care
      • Patient Representative
    • WP9 Communication and Dissemination >
      • Eva Morava
      • Jaak Jaeken
      • Paula Videira
      • Andrea Berarducci
      • David Cassiman
      • Bobby Ng
      • Sandro Bellinzis
    • WP10 Donations & Funds
    • WP11 Collaborations and Open positions
    • WP12 CDG & Allies Community Advisory Committee
  • Resources
  • Donate
  • Blog
RESEARCH_CDG
  • About
  • Research
    • WP1 executive commitee
    • WP2 CDG Diagnosis
    • WP3 CDG Genetics
    • WP4 Biology to guide CDG therapies >
      • GlycoImmunology >
        • ImmunoCDGQ
      • Cardioendocrine
      • Liver
      • Neurology
      • Hematology
      • Ophtalmology
      • Skeletal Disease
    • WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
      • Biomedical
      • Computational
      • Metabolomics
      • Systems Biology
    • WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
      • Patients
      • Pharmacological
      • CDG ​Portugal
    • WP7 CDG psychology and educational research >
      • Psychology
      • Educational
      • Language
    • WP8 CDG Lobby and Representation >
      • Patient-Centered Care
      • Patient Representative
    • WP9 Communication and Dissemination >
      • Eva Morava
      • Jaak Jaeken
      • Paula Videira
      • Andrea Berarducci
      • David Cassiman
      • Bobby Ng
      • Sandro Bellinzis
    • WP10 Donations & Funds
    • WP11 Collaborations and Open positions
    • WP12 CDG & Allies Community Advisory Committee
  • Resources
  • Donate
  • Blog

BLOG

CDG & ALLIES- PPAIN keeps getting stronger and (even) more international

10/28/2017

0 Comments

 
#CDGNews We are just so thrilled to announce that Eleonora Passeri has joined our international #CDGResearch network!!
Eleonora is both a science and social media consultant and we are very lucky to count with her expertise and motivation.
To know more about Eleonora, read her biography HERE 
Also, you can't miss her #RareTalk interview HERE.
Welcome Eleonora! 
The CDG Community is very glad to have you join us - We know that Together we'll do great things!
Picture
0 Comments

Join your Voice to EURORDIS - What are your research priorities?

10/6/2017

0 Comments

 
#RareDiseasesNews: EURORDIS - European Rare Diseases Organisation has launched a new 5min-long survey for patients and families around the world to share their views on RESEARCH. You can contribute until October 26. Let's make the CDG Voice Heard, Let's identify our priorities as a Community! The survey is available in 23 languages!
Find it HERE  
Picture
0 Comments

Congenital Disorders of Glycosylation? Come again?

10/6/2017

0 Comments

 
#RareDiseasesNews:What is #CDG? It stands for Congenital Disorders of Glycosylation and these are a group of metabolic disorders with over 100 different types. The most common form is called PMM2-CDG.
​ Watch this video to know more, share and like it to raise 
#Awareness! Thank you💚
0 Comments

    Author

    Write something about yourself. No need to be fancy, just an overview.

    Archives

    June 2018
    May 2018
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017

    Categories

    All

    RSS Feed

Picture

ABOUTE  |  RESEARCH  |  RESOURCES  |  DONATE  |  BLOG


©2017 CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies - PPAIN)
  • About
  • Research
    • WP1 executive commitee
    • WP2 CDG Diagnosis
    • WP3 CDG Genetics
    • WP4 Biology to guide CDG therapies >
      • GlycoImmunology >
        • ImmunoCDGQ
      • Cardioendocrine
      • Liver
      • Neurology
      • Hematology
      • Ophtalmology
      • Skeletal Disease
    • WP5 SYSTEMS BIOLOGY AND BIOINFORMATICS >
      • Biomedical
      • Computational
      • Metabolomics
      • Systems Biology
    • WP6 CLINICAL AND THERAPEUTIC CDG RESEARCH >
      • Patients
      • Pharmacological
      • CDG ​Portugal
    • WP7 CDG psychology and educational research >
      • Psychology
      • Educational
      • Language
    • WP8 CDG Lobby and Representation >
      • Patient-Centered Care
      • Patient Representative
    • WP9 Communication and Dissemination >
      • Eva Morava
      • Jaak Jaeken
      • Paula Videira
      • Andrea Berarducci
      • David Cassiman
      • Bobby Ng
      • Sandro Bellinzis
    • WP10 Donations & Funds
    • WP11 Collaborations and Open positions
    • WP12 CDG & Allies Community Advisory Committee
  • Resources
  • Donate
  • Blog